GLOVED trial needs people to test their prototype glove

Update: all available places to test the glove have been filled by 13-10-2022, and unfortunately the option of participating via an online meeting had to be withdrawn. Thank you all for volunteering! Together we can make a difference to the treatment of Dupuytren in the future. Letter as received from the GLOVED team: GLOVED project: Review of a Combined Adjustable Splint and Digital Goniometer prototype by participants living with Dupuytren’s Contracture We would like to invite you to participate in this research project which forms part of the National Institute of Health Research (NIHR) funded GLOVED (Generation and evaLuation Of hand therapy deVices for Epidermolysis bullosa and Dupuytrens) project: Adjustable Splint Glove manufacturing and commercialisation (NIHR200656). The GLOVED project involves refining and evaluating a Combined Adjustable Splint and Digital Goniometer prototype with a Hand Therapy Online (HTO) system for people with Epidermolysis Bullosa (EB) and Dupuytren’s Contracture. The initial prototypes and HTO system were developed for EB in the NIHR i4i funded GLOVE Project (II-LB-0813-20002). This invitation is to attend a face-to-face, or online workshop, at King’s College London to review a Combined Adjustable Splint and Digital Goniometer prototype. The purpose is to invite people living with Dupuytren’s Contracture to review a Combined Adjustable Splint and Digital Goniometer prototype. The prototype will be demonstrated to you by the hand therapists from Guy’s and St Thomas NHS Foundation Trust who are researchers on the funded project. Your feedback regarding suitability will provide the project with valuable information to refine the prototype before it is tested by people living with Dupuytren’s Contracture early 2023. The workshop is arranged for Thursday 27th October between 11.00-15.00. Refreshments will be provided. The address is: Room G13. James Clerk Maxwell Building 57 Waterloo Road London SE1 8WA – Map Reference James Clerk Maxwell Building - Google Maps Please contact Kim Terry (Email kim.a.terry@kcl.ac.uk) if you would like to attend in person or online. Best wishes Patricia Grocott Professor of Nursing Technology and Innovation

Sign ups

So this week we have been busy trying to do lots of background things, as you will have hopefully seen on Facebook there have been a few messages from Dr Chris Bainbridge (if not look now!) and it is interesting to see how things are going for him and what the outcome of the survey will be, fingers crossed he shares.

Pfizer have been in touch and so I have done a few bits and pieces that they wanted from us so they can help us. I have also contacted the business card guy and waiting to hear back.

We have completed the sign up on YouTube and we are just awaiting to hear back that everything was ok, can't see why it wouldn't be and hope it doesn't take too long, like the Google Grants that was applied for before I started.

In other news I have started the process of becoming a badminton coach which I am only announcing here as when I hopefully become fully qualified I hope to do coaching days to raise money for the BDS. This is also a sign of how far my Ledderhose has come as before radiotherapy finished 4 months ago I could barely walk....

I also have a new Dupuytren's glove(s) from Anna so I am going to have a try with them and see what it is like, after all I do not have this condition and it will be interesting to see how hard it is to do things with them. I will report back on how I cope, FYI I will not be taking them to work as typing is the main this I do I don't think the boss would be too happy, maybe I can arrange to do it a way to raise awareness. I am now away on holiday so hopefully there will be some updates from YouTube etc when I get back.