Showing posts with label radiation. Show all posts
Showing posts with label radiation. Show all posts

Monday, 15 June 2020

Radiotherapy Video

We have a present for you! With thanks to Dr Richard Shaffer for the lecture and the interview, and to Mr Ian Ireland for the editing. 
A video on Radiation Therapy for Dupuytrens and Ledderhose. 
 
We attempted a Teams patient meeting last Saturday. It worked, and I am planning to do it again. if you're interested, send me your email address.
 
More news coming soon.
 

Tuesday, 3 July 2018

good news for Ledderhose patients in Glasgow

Some good news!

In the Beatson Centre in Glasgow patients from West Scotland can receive radiation treatment for Ledderhose. Patients from other parts of Scotland can ask their clinicians to apply but are not guaranteed to be accepted. Clinicians are to contact Mr Schipani for more information.

The first patient is actually being treated this week, I hope the response to treatment is good and the clinicians are happy about this new treatment modality.

On a sad note the NHS is considering restricting certain operations even more, and Dupuytren's surgery is one of the procedures named as 'ineffective' and doing more harm than good. The Hand Surgeons (BSSH) have already made a statement and I have offered the Charities help if there is anything we can do in a consultation to show surgery is effective.

Tuesday, 13 September 2016

More good news on the trustee front

Dear all.

We are able to introduce two more trustees, Mr Richard Shaffer has agreed to join us and become our second radiation therapy expert and trustee; and Mr Dominic Furniss has become a trustee, his help will be invaluable as he is not only a Dupuytren's surgeon but he is principal investigator of the BSSH genetics of Dupuytren's disease consortium.

We are very lucky and extremely honoured to have the trustees we have, not just our two newest but all of them are very clever and dedicated people.

The next step is building up our patient member base, we need people with web skills, fundraising skills, designer skills, patient support skills, any skill or just good intention to help us support patients all over the country, and sometimes even further away.

Don't forget the focus group meeting in London at the end of this month (see our previous blog or our website or facebook page).

Finally the Oxford team is running another study, DISCO (don't start singing it!), for which they want people to fill in a questionnaire and send them a picture of their hands, to find out how Dupuytren's disease affects the community and the individual people. DISCO people!