It has been a while

It has been a while since I posted on here, I have been really busy with my daughter (now 3 months old!) and with other things such as my training to become a badminton coach. A lot of people seemed to like the picture of my daughter in her BDS baby grow, you can get those from the shop and there is a link to this on the right. She continues to grow so much each day and I just hope she doesn't have the Dupuytren's genes (should I have it / them).

Things have settled down a little but at work and I have been able to start cracking on with some science thing in my lunch break. 

I have a lot of scientific knowledge in my head and I use that to understand the papers and things that come out on Dupuytren's, it would be nice if others could also understand these papers and I would not have to try and right things in such simple terms, this is a challenge for several reasons. 1) I had spent around 10 years learning science before leaving it last year and 2) I was in it for so long that I never know how much other people know. We are hoping that together and with the help of non-science friends and family we can write a comprehensive scientific report on Dupuytren's that will help many patients understand what it is they have. 

This is something that is going to take quite a while as there is a lot to cover and a lot of testing and then working in the gaps and removing excess information and a lot of things are best said with pictures which we are having to make from scratch. I think that helping patients understand what they have may help them understand why different treatments are used and why others are not recommended. I am also hoping to send the finished article to a contact we have who works in Dupuytren's research, hopefully he can give it the once over to make sure that we are not occidentally lying to you all.

Well we have finally finished our reply to the BSSH about radiotherapy,  that letter will be on it's way early next week. It has been a job and a half finding the right articles, but at last we managed.

And just as you think the website is complete for now- I noticed the bit on Garrod's pads and dorsal nodules was missing! So I have re-written that, and emailed it to our webmaster, I hope he'll be able to add it in soon.

What next? For a while I have been thinking about wriiting a more in-depth piece on the way fibroma's form, but that would be a big job, and as the scientists constantly change their minds and find new things, would need to be kept up to date at least monthly. So I'm not sure yet, but it may come.

My shoulders ( both sides now) are still playing up, I feel like I should be an expert on frozen shoulders but if someone asks how do you know if you've got a frozen shoulder I don't have an answer, as my two have developed so differently. Really the main thing was pain, stiffening up, and with both I noticed I started saying 'Ow' when stretching the arm forward or sideways to grab something. Not very specific is it?  That's Dupuytren's, no two cases are the same.

I reads omething this week that Boris Karloff may have had Dupuytren's, and Bill Owen as well? Could not find any conformation, so if anyone had compelling pictured of their hands I'd love to see them.