Saturday, 12 October 2019

Peyronie's patient on tv?

We have been asked if any of our members would be willing to help. I appreciate this is a very private condition, so please consider it carefully. Raising awareness is always a good thing, but it may not be easy for anyone affected to be examined on national television, and most Peyronie's patients tend to be older than the required age range. Still I hope someone is brave enough to step forward.
This is the request we got:

The Garden Productions (makers of ’24 Hours in A&E’) are making a new BBC programme that is looking for people based in the UK aged 18-30 who have a health question that’s playing on their mind. We know having someone examine your penis is sometimes an awkward encounter, and as part of this programme we want to feature people with Peyronie's who haven’t had it checked out by a doctor. 

We are working with a brilliant, friendly fully qualified doctor who wants to make medical advice clearer and more accessible. We hope by discussing Peyronie's on our show we will help raise aware and encourage more people to seek diagnosis and treatment if they wish to do so. 

If you are interested in being involved, please apply here:  http://www.thegardenproductions.tv/health
 
 

Wednesday, 11 September 2019

A cure for Dupuytren's- webinar now online

Our research webinar is now online! Watch it on YouTube, or better still subscribe to our BDS YouTube channel and have links to all three webinars available.

Monday, 12 August 2019

A cure for Dupuytren's- when and how?





Great news! We have started planning a research webinar, titled "A cure for Dupuytren's- how and when?"
It will take place on wednesday 28th August 2019, starting 8pm GMT and lasting about an hour we hope.

Confirmed speakers are:


Prof Dominic Furniss DM MA MBBCh FRCS(Plast) (who does research in Oxford on genetics of Dupuytren's, amongst other things) Prof Jagdeep Nanchahal BSc PhD MBBS FRCS(Plast) (the brains of the RIDD trial), Prof Duncan Angus McGrouther FRCS FRCS(Glas) FRCS(Ed) FMedSci (who used to work in Manchester and has done a lot of research there) and Drs Elizabeth Laird DipStat(Open), BSc, PGCertHE, PhD, FHEA and Emma Beamish (Drs Laird and Beamish work in Liverpool and research how to affect the extra cellular matrix to subdue our nodule forming cells).

We will be using Zoom again, so you need to register in advance, then on the day click on the link you were send after registering about 10-15 minutes in advance so you have time to download the viewer onto your device if you don't have it yet. Simples!


 

The link to register is here:
 



I hope many of you will attend, you can just watch and listen, ask questions, or ask questions afterwards and I can forward them.. an opportunity to find out what scientists are working on for us and for future generations!

Hope to see your name on the list.

Anna Schurer (anna@du[puytrens-society.org.uk)

Friday, 24 May 2019

PNF webinar

The PNF webinar was a success, we had an international forum of very experienced doctors explaining the procedure. I hope you all managed to watch it, but if not, here is the link to the webinar on YouTube: https://youtu.be/mLXOlEJbkkY
So now on to the next idea, the doctors thought maybe a webinar on 'the future of Dupuytren's disease' with recent research explained? I am not sure that will fit in an hour!
If anyone has an idea what they would like to see covered, let me know. Ledderhose, Peyronie's and radiotherapy are still on the list, as webinar or in lecture form.
Special thanks to our international speakers Dr Gary Pess and Prof Steven Hovius. Our doctors are the best!

Tuesday, 14 May 2019

Can you help?

Oyez oyez! Calling all people in Oxfordshire UK or surroundings who have personal experience with Frozen Shoulder. NDORMS, the Nuffield Department of Orthopaedics, Rheumatology and Muskuloskeletal Sciences part of Oxford University, want to study Frozen Shoulder. Please help them if you can! email:  aff@kennedy.ox.ac.uk
 
 

Friday, 3 May 2019

Big news and bigger news!

I am not sure which is the biggest news item here!
We are planning a second webinar. This one will be on PNF, speakers are Prof Tim Davis, Prof Steven Hovius (who did the lipofilling trial), Dr Gary Pess (who performs more PNF than anyone else in the US probably), Prof Chris Bainbridge (from the Pulvertaft Centre in Derby), and patients Ian Ireland (personal experience) and Anna Schurer (PNF and the NHS).
It will be the 20th May, at 8pm GMT. As before it will be using a program called Zoom. We have quite a few places left, so if you're interested and haven't let me know yet, send me an email!
anna@dupuytrens-society.org.uk

The second news item: Oxfords own professor Jagdeep Nanchahal has won the 2019 Dupuytren's Award, for his work on adalimumab in Dupuytren's (the RIDD trial) This award was sponsored by patients from the BDS and the (now defunct) American DDSG Facebook group, as well as the IDS (International Dupuytren Society). A worldwide acknowledgement for the study. Many congratulations to Prof Nanchahal and his team.
https://www.dupuytren-online.info/dupuytren_award.html


Monday, 18 March 2019

First webinar and follow up?

Well we started talking about the next webinar! No details yet, but more to follow when I can share. Meanwhile feel free to watch our first webinar here: Webinar2