Wednesday, 25 April 2018

Patietns needed

To all UK Dupeys! A professor in Nottingham is looking for Dup patients to form a patient advisory group, to help him design research that is important for patients. Anyone in the (larger) area of Nottingham who is willing and able to help with that? A great opportunity to move treatment and disease understanding forward!
email me on anna@dupuytrens-society.org.uk, respond on Facebook https://www.facebook.com/britdupsoc/  or on Twitter please! @Dupuytrens

Saturday, 21 April 2018

Website news and Dupuytren Award 2018 news

Our website has been updated! Please let me know what you think, I think it looks more professional (shame I can't take the credit) and will be easier to navigate. If you find any problems, let us know.

On another note: the Dupuytren Award sponsored by the BDS and the American DDSG Facebook group has been awarded, and the certificate will be given to the recipient at the BSSH meeting in Cardiff later this year.

Massive congratulations and a big THANK YOU for researching our pesky problems go to Dr Michael Ng!!

Friday, 30 March 2018

Trials happening

Exciting times!

The new bank account has been approved, so that is a step forward. Now We just have to get it up and running, and change bank details with all the giving sites and donors. I feel a coffee-binge coming on!

 The Dutch radiotherapy trial for Ledderhose is well under way, there are plans for a Dupuytren's radiotherapy trial in Australia, in Finland is a trial comparing PNF, Xiapex and LF surgery, and the two trials running in our country, RIDD and DISC are recruiting patients all the time. So doctors out there are trying to get more understanding of what treatment to recommend at what stage!

 The official announcement for the Dupuytren Award is expected soon, this year funded by patients and doctors!

Meanwhile if you are going to try any Over The Counter products for you health problems, think of this picture before you spend your money!
 
Have a good Easter or Passover this weekend, or just have a good weekend!
 


Monday, 5 February 2018

Fundraiser for the Dupuytren Award

We have started a fundraiser!
We decided in co-operation with an American Facebook group to do a fundraiser, hoping to finance the International Dupuytren Award. This is a reward given to (or split over) the most promising Dupuytren research yearly, basic scientific or clinical (or both).

Sponsoring this award will show researchers and surgeons that patient groups are interested in new treatments, and want to be involved. After a few months of discussions and trying to organise it, here we go!

If you can and want to contribute, however little you can give, go to the International Dupuytren Society page and use the first donate button. Thank you for your contribution!
https://www.dupuytren-online.info/donations.html

Let's show the scientists what we are made off.

Thursday, 18 January 2018

Research and support

We have a new piece on the research page, about research being done in King's College London on fibrotic conditions. Check it out! http://dupuytrens-society.org.uk/information/ongoing-research/ 
 
A second bit of news: the South East England support group is starting to take shape, they had a meeting yesterday. If you are interested please let us know.

Tuesday, 19 December 2017

Registered charity number



We have an official charity number at last!! A good Christmas present for the charity.