On 28th December we had our trustee AGM, this year we had a good show, with 6 people joining in the Skype conversation (although we kept loosing at least one).
We discussed a lot, not in the least asking Birgir Gislason to become our trustee for the Peyronie's side. He has been helping us for a while, so it was time we made it official.
A Peyronie's awareness campaign is planned for next year, with Birgir and Dr John Glees very enthousiastic about how they can help. Thank you to both!
Gemma is now our secretariat for the next 6 months, Annemarie remains treasurer. No other changes in the line-up.
We had some good suggestions about how the charity can evolve, and the minutes and financial report wil be put on the website (as soon as I can work out how to do so, lol)
The website is now completely on Wordpress, there are some teething problems but on the whole it has gone very smooth. The IDS had their AGM on 29th December, Anna attended (by telephone conference)
A Scottish MP Martyn Day has asked the Secretary of State for Work and Pensions, what the timescale is for reaching a decision on the proposals to add Dupuytren's Contracture to the list of industrial injuries disablement benefit diseases. The answer is a bit disappointing: The proposal to add Dupuytren’s Contracture is still under consideration and a decision on this will be made in due course.
Still I will email the MP and express our gratitude for him standing up for Dupuytren's patients.