May 8 is International Viking Day, so the BSSH and the BDS together decided to jump on the bandwagon and declare a Dupuytren awareness day the same day, and post Tweets (and toots, and facebook posts) all day long. Here is a summary of what the BDS posted:
Today is Viking Day! And Dupuytren's is called "Viking Disease". But let's be honest, it isn't passed on by Vikings. So we can stop blaming the poor Vikings, and admit we don't know where the disease originated. Or why we get it.
Some recent research or study articles on Dupuytren's Disease research:
Dupuytren's and other diseases
Research with as yet no result
Collagenase replacement research
Viking heritage would not be all that bad! We like calling ourselves Viking Warriors, and the idea of decent personal hygiene is a plus as well!
BSSH training days on Dupuytren, charity presence. We have been promised a table in the hall where the BSSH does the Dupuytren's training in June. We will be able to introduce our charity to the next generation of hand surgeons! We are busy getting leaflets and other products printed and ready.
There are societies in many countries.The main organisation is the International Dupuytren's Society, and there are societies in Germany, the US, the Netherlands, Canada, Italy, Russia.
We are in contact with doctors in other countries such as Belgium, Argentina, and Australia Facebook, Twitter, Websites, Mastodon, blog We have a decent social media presence, and connect with a lot of people this way. We even follow people on LinkedIn, via a personal account.
We have a webshop on Teemill, with proceeds going to the Dupuytren Research Group, to support their search for a biomarker. We can easily add different designs and different garments to the shop, so if you are looking for something in particular, let us know.
There was a recent law change in the prescription of Dupuytren's as Industrial Injury -now far less people will be able to claim, and many will have to wait for treatment until the disease is advanced enough to claim compensation.This means they risk more pain and disability, and the result of treatment is likely to be less good, with more invasive treatments needed. We started a petition to show our concerns to the government
Viking pictures all original images by Hao Qin. Free to use under the Unsplash License, text added.
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