So today I had a chance to look through the 1st 90 sets of survey results, hopefully there will be many more. So the first graph below shows just that the average age of diagnosis for the survey group is mid forties and the max is 68 and the low was 12. I think that this combined the results for the second graph suggest either that we are generally diagnosed by the time we are 60 or that people over 60 are less likely to take an internet poll. Graph 2 shows an increasing number of people being diagnosed with age until they are over 59 when the number drops significantly.
Interesting I next looked at the treatments the patients received. The highest amount of patients had surgery, interestingly it came back in 17 patients and didn't in 8 and of those that had it only 6 would recommend it and even those I was only asking what patients would recommend 9 people actually said don't get surgery. Typically it came back in about 4 years.
NA was not popular in terms of numbers, neither was physio but both had 100% success in the 3 patients that had those treatments, interesting and I would like to know how severe the physio cases were. Steroid injections had been used in 2 people, in neither did it come back but neither would recommend.
Xiapex stood out, although only 3 patients had it, in all it came back and inn an average time of only 1 year, 1 person still recommended and one said avoid the other said nothing.
Radiotherapy performed fairly well.with 5 patients have no disease come back and 2 having it come back in an average of 4 years but of the 7 patients 5 would recommend it.
7 patients had surgery, in 5 it came back in an average time of 2.5 years, 1 person would recommend it whilst 5 said to avoid.
1 person had a steroid injection and it did not come back.
7 patients had radiotherapy for Ledderhose, in no patients has it yet to come back and all patients would recommend. Make what you want of that.
Nothing conclusive and more data would be great and some potential trends still to look at, great to have some data though, particularly the information on the treatment options.